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Support & resources

Downloadable resources

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Download the Chronic GVHD Symptom Assessment Form

Keep track of new and existing symptoms with this form.

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Doctor Discussion Guide

It may help you have better conversations with your care team and get the GVHD information you need along the way.

Video resources

Managing chronic GVHD 100 days after transplant

Watch GVHD expert Dr Cutler guide you through the best ways to track your symptoms and share them with your care team 100 days after transplant and beyond.

Speaking up about GVHD—Brad’s story

Watch Brad share his story about recognizing acute and chronic symptoms of GVHD and advocating for his healthcare needs.

Don’t let GVHD symptoms be ignored—Jan’s story

Watch Jan share her experience with chronic GVHD after her stem cell transplant and how she learned to explain her symptoms in detail to get the care she needed.

Educate yourself early about GVHD symptoms—Sue’s story

Watch Sue explain how she educated herself about acute GVHD symptoms and learned to ask her doctors questions about what to do and expect after diagnosis.

Image of man and woman sitting together and looking at a smartphone and digital tablet
Image of man and woman sitting together and looking at a smartphone and digital tablet

Stay up-to-date on GVHD insights and resources

Sign up for occasional email updates and to receive your GVHD introduction kit, including a personalized GVHD Medical Alert card you can share with others who need to understand your health status.

Looking for a digital way to track your medicines?

Creating a list with pen and paper always works. But to keep things easily at your fingertips, consider a mobile app you can use on your smartphone or tablet. Many allow you to record the details of each medicine you take and set up reminders for when it’s time to take or refill them.

The Google Play (for Android devices) and Apple (for iPhones) app stores have plenty to choose from. To help you choose:

  • Do an online search for best medicine tracker apps. You’ll find plenty of reviews from users, technology testers, and healthcare professionals
  • Check the customer reviews and overall ratings of different trackers within the app stores
  • Ask your care team for a recommendation
  • Look for features that will help you most. Some let you set reminders for taking doses and alerts for when refills are due. Some tout extra ease of use or have versions for different languages. And while some charge a small fee, many are available for free
  • Sample different ones to see what works best for you. A little time spent testing different options could help save you time and effort with staying on track with your medicines in the long run!

If you’re a cancer survivor, you can also find counseling services, support groups, financial assistance programs, and more through these organizations:

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Image of a group of people sitting in a circle

Our advocacy group partners